| November 21, 2017


I’m Stefanie. I have XLH, a rare condition that can cause severe pain and deformity. For a young girl growing up, this was a huge challenge. I faced bullying, low self-esteem, and isolation. I had an emotionally aloof mother and an alcoholic father, which pushed me towards a suicidal adolescence. Was it any wonder I ended up in an abusive and violent marriage? I had to find a way to a better future for not only myself, but my baby, and that journey saw me facing the biggest battle of all. This is my story.

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